Fred’s Head from APH, a Blindness Blog

Fred’s Head, offered by the American Printing House for the Blind, contains tips, techniques, tutorials, in-depth articles, and resources for and by blind or visually impaired people. Our blog is named after the legendary Fred Gissoni, renowned for answering a seemingly infinite variety of questions on every aspect of blindness.

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Tuesday, October 03, 2006

"Beyond the Stares: A Personal Journal for Siblings of Children with Disabilities"

Beyond the Stares was written by a group of children and young adults from St. Louis, ages nine to fifteen, with brothers and sisters who are blind or visually impaired, many have other disabilities as well.

Beyond the Stares is a collection of their stories, and their messages to other brothers and sisters throughout the country who have a sibling with a disability. These young writers came together through a sibling group sponsored by the Delta Gamma Center for Children with Visual Impairments. Their dream was to share what they know about growing up with a brother or sister with a disability.

Throughout the process, they learned about themselves and their families. At the end of each chapter, there is a page for readers to write their own stories. The young authors are: Tyler Adolphson, MaRissa Baker, Paul Fields, Kathryn Jacob, Lauren Jacob, Emily Sartorius, Mac Slone, Elizabeth Vaughan and Rachel Vaughan.

Excerpts from the Chapters


Each of our brother's and sister's successes makes us proud and gives us hope that other people will learn what we already know - that our siblings are worthy of respect and love just like people without disabilities.

How Others React

It seems that many people cannot see beyond our siblings' differences to what makes them special. One advantage of growing up with a sibling who has a disability is that we may be more accepting of differences than most people.


We understand that raising a child with disabilities is a big job, and we are proud when we can help ease our parents' loads. But sometimes, the job is almost too big for us.


We have more responsibilities than many other kids our age. While it can be a drag, it can also be a source of pride. Our parents trust us with extra responsibilities and give us an opportunity to show them what we can do.

Click this link to purchase Beyond the Stares: A Personal Journal for Siblings of Children with Disabilities from The Delta Gamma Center website.

For pricing for orders over ten books, please call 314-776-1300, ext. 102.

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